See more in these videos about chronic granulomatous disease (CGD)

Watch these videos for more information about living with CGD and see what goes into managing your—or your loved one's—condition.

Treatment and Compliance

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Dr. Hana Neibur: CGD changes with your age. What helps decrease, particularly, the frequency of infections, are taking medications on a daily basis to prevent infections. As patients get older and become adults, infections do tend to increase in frequency.

Dr. Artemio Jongco: And so it’s really important that all parties involved--,patients, caregivers, and their providers--start talking early and transparently about transitioning from one stage of life to another. By building that relationship slowly over time and being clear with what you need and what you want, then open lines of communication can facilitate smoother transitions.

[Dr. Hana Neibur:] If there are problems with taking your medications, talk to your doctor about that. It’s important to not become complacent about taking those medications. It is so important to try and prevent infections and the damage they can do afterwards.

[Dr. Artemio Jongco:] And hopefully, during times of stress, like when the patient is sick or when the patient’s about to make a major life decision like go to school, go away to school for the first time, all the parties can get together and come up with a plan that works for your particular situation. Because no one plan fits everyone. And you really need to tailor the plan to fit your needs.

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