How to reduce caregiver stress

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My biggest getaway for me when, you know, when I just needed a break or whatever, I would go to my mom cave and paint. I like to paint. I did a lot of painting, and I actually wrote a book about painting. That’s my thing. I like art. I think it is really good to have something you can do, where you can see an accomplishment. If it’s knitting or you know, reading or taking pictures or whatever it is.

One of the things that I would do to just take time away would be to swim. We always had a pool available. A chlorinated pool for Dustin to swim. And even if Dustin was in the pool, exercising in general will take stress off of you. You can walk with your child. Push him in a stroller. It’s not getting away from the illness or the child. It’s letting your body release that tension that you’re building up, regardless if it’s with your child or without.

I’m a carrier, and I sometimes forget that I need to take time off and just, even if it’s just going down for a cup of coffee by myself or just enjoying some time by myself, cause everything’s about the kids. 24/7. So my advice to myself and to all the other moms who are carriers is take some time for yourself. Don’t feel guilty because at the end of the day, the kids are fine. They’re doing good. So why not take, you know, an hour a day and just enjoy it for yourself.

Being a caregiver means you are greatly impacted by chronic granulomatous disease (CGD). As you learn to adjust your routines and everyday living to help keep your loved one safe, it’s natural to feel overwhelmed and stressed at times. Hear from other caregivers as they share their experiences and helpful tips about finding balance and managing life with CGD.

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Important Safety Information

What is ACTIMMUNE® (Interferon gamma-1b) used for?

ACTIMMUNE® is part of a drug regimen used to treat Chronic Granulomatous Disease, or CGD. CGD is a genetic disorder, usually diagnosed in childhood, that affects some cells of the immune system and the body’s ability to fight infections effectively. CGD is often treated (though not cured) with antibiotics, antifungals, and ACTIMMUNE.

ACTIMMUNE is also used to slow the worsening of severe, malignant osteopetrosis (SMO). SMO is a genetic disorder that affects normal bone formation and is usually diagnosed in the first few months after birth.

When should I not take ACTIMMUNE?

Don’t use ACTIMMUNE if you are allergic to interferon-gamma, E coli-derived products, or any ingredients contained in the product.

What warnings should I know about ACTIMMUNE?

At high doses, ACTIMMUNE can cause (flu-like) symptoms, which may worsen some pre-existing heart conditions.

ACTIMMUNE may cause decreased mental status, walking disturbances, and dizziness, particularly at very high doses. These symptoms are usually reversible within a few days upon dose reduction or discontinuation of therapy.

Bone marrow function may be suppressed with ACTIMMUNE, and decreased production of cells important to the body may occur. This effect, which can be severe, is usually reversible when the drug is discontinued or the dose is reduced.

Taking ACTIMMUNE may cause reversible changes to your liver function, particularly in patients less than 1 year old. Your doctor should monitor your liver function every 3 months, and monthly in children under 1 year.

In rare cases, ACTIMMUNE can cause severe allergic reactions and/or rash. If you experience a serious reaction to ACTIMMUNE, discontinue it immediately and contact your doctor or seek medical help.

What should I tell my healthcare provider?

Be sure to tell your doctor about all the medications you are taking.

Tell your doctor if you:

What are the side effects of ACTIMMUNE?

The most common side effects with ACTIMMUNE are “flu-like” symptoms such as fever, headache, chills, muscle pain, or fatigue, which may decrease in severity as treatment continues. Bedtime administration of ACTIMMUNE may help reduce some of these symptoms. Acetaminophen may be helpful in preventing fever and headache.

What other medications might interact with ACTIMMUNE?

Some drugs may interact with ACTIMMUNE to potentially increase the risk of damage to your heart or nervous system, such as certain chemotherapy drugs. Tell your doctor about all other medications you are taking.

Avoid taking ACTIMMUNE at the same time as a vaccination.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

The risk information provided here is not comprehensive. To learn more, talk about ACTIMMUNE with your healthcare provider or pharmacist. The FDA-approved product labeling can be found at http://www.ACTIMMUNE.com or 1-866-479-6742.