Upcoming chronic granulomatous disease (CGD) events

As a community, we can come together and support each other. For patients, caregivers, and those on—and not on—therapy, these events provide a place to connect with people like you.

ACTiON Meetings

ACTiON Meetings are open to all local CGD patients and their families. Hear presentations from physicians and patients, learn about Horizon Patient Services support, and participate in informative Q&As.

Upcoming ACTiON Meetings:

February 17, 2021 from 7:00-9:00PM CST

March 24, 2021 from 7:00-9:00PM CST

For more information about attending an upcoming event, email CGDpartners@horizontherapeutics.com


Family Forums

Family Forums are weekend events where you will discuss CGD, lifestyle tips, and more. Help shape educational programs, important initiatives, and the future of the CGD community.

For more information about attending an upcoming event, email CGDpartners@horizontherapeutics.com

Group picture of a CGD family forum

IDF Retreats

IDF Retreats organized by the Immune Deficiency Foundation are weekend gatherings designed for everyone in the primary immunodeficiency (PI) and CGD communities. Find empowering presentations about CGD, Q&As with healthcare professionals, panels by patients and caregivers, opportunities to connect with the CGD community, and more.

Group picture of an IDF retreat

For more information about attending an upcoming event, email CGDpartners@horizontherapeutics.com

Developing a Support Network

You don’t have to feel like you’re living with CGD alone.

Read the full video transcript

[Dr. Hana Neibur:] One of the hard things about being a family with CGD is that it is a very rare disease. So it can be very isolating.

Dr. Nicholas Hartog: It may be very uncommon for you to even know anyone else in your life that has this disease.

[Dr. Hana Neibur:] There are patient and family and parent support groups out there. They can help you feel less alone. I think that sense of community helps acceptance of the fact that your child does have a chronic illness.

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