Patient and Caregiver Tips

Helping you face the challenges of CGD

Whether you have just been diagnosed with CGD or are caring for someone who has it, life with the disease "may feel like a roller coaster." One moment you think you have it under control, the next a serious infection happens. In this section, get advice from CGD patients, caregivers, and healthcare providers so you may face each day with more confidence.

Meet CGD carriers

Hear stories from other carriers about how they take care of themselves and their child with CGD.

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Turn your inbox into a help box

Connect with a CGD nurse educator. Get practical lifestyle advice. Stay up to date on CGD info.

Find upcoming CGD events

Get details about educational events for the CGD community.

Find events